Yes, physically must get stronger..yesterday she did good. 4 mins on bike, 8 mins on 'arm' bike.She sits in place and pedals..This is very good for her. But until the predisone/steroid is actually ceased, the strength meter will stay on the low end. But it is so good to keep these muscles active & working..Her muscles, as one Dr. said: "are like overcooked spaghetti noodles'..
Today she was tired..Getting treated, anti-biotic (augmentin) for another Urinary tract infection, the previous painful one she experienced at home has been eradicated though. And fortunately this infection is has had a kinder, gentler approach. Her white count has been low, around 1.5, (normal can be from 4 to 12) thus she received neupogen..which stimulates or boosts the blood neutrophils, a very generalized way to describe this med..She is now at 6K! wow.. Her platelets seem to be holding at or around 30K..that's good for her. I have mentioned it before, the normal platelets range from 150 to 350K..so this gives you an idea of Becky's low level, but again, it is sufficient for her at this time, she has not an infusion for a few weeks! YES! The platelets will 'catch up' as Dr. Snyder has said.
She was a little down today. Tired of the routine..Since Sept 30th..the hospital has been her 'home' with the exception of the few days at home..But she has and continues to so grateful for those who are treating her.. She knows this is where she STILL needs to be..
WE just pray her legs and arms can strengthen. And I may strengthen myself by finding a support group, consisting of those who are experiencing a similar life path or have experienced it.. I think or I know this will soothe my concern, or any anxiety I may have, which sometimes does rear it's head from time to time...Not always stemming from Becky's condition, but a myriad or combination of thoughts and my own exaggerations seem to envelope me about her life and other 'life arrows' that stream toward me. BUT hey, I am not different than any of you!..we all have these "Perfect Storm' moments or weeks. Yes, of course I worry about what tomorrow will hold for my wonderful wife..for two years we have both had great concern as we were walking in the' blanket of uncertainty', but this week has seen a 4D effect...all sides..all emotions in propulsion..full throttle..
My prayers are calming..my trust is in knowing the Lord is still in control..AS mentioned, my human weakness wants only to trust in my strength, or to put my head under the blanket and not come out for a few days..BUT, that ain't what it should be..I take small steps..I thank the Lord for all things, period. I also slip on a good pair of running shoes, take a walk or run, with some good songs in my head, and get my therapy in motion. I am thankful to have job..very grateful...My daughter is also amazing. So mature..so comforting to have her near me some days...OH we do have our normal testy moments.."clean your room".."do this, do that"..but she has been a soothing voice as of late.
Enough for now, probably too much actually..thank you digesting my soul indulgence....
Can't say enough how thankful we are for all of you that follow us..So comforting..so reassuring..
Much love to you all.. Stay dry..have a nice latte and enjoy the moment..
Celebrate life!
Bill, Becky and Abbey
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