Hello..hope your Halloween was safe and candy 'lite' and weren't your hands delighted to turn back the clock hands (digits) that wonderful one hour? ..and this segues into Becky and her white count and platelets turning back ..Whites were 3100 and platlets were also around 31K, (down from 37K)...But again, it's OK, per: the Doctor. "Don't worry", he said. He's still pleased with what he is seeing. Becky was feeling OK considering, still tired, foggy...Solid food not her thing right now, but she does nibble on cereal. Another animal note. Thought we may have to ask the dog to leave for three months, but Dr. said, "no, no, it's OK as long as he is NOT in the room." Hey! thanks Doc. Will follow these orders, no problem. The Doctor is a dog lover. He knows exactly what our 'best friends' can and cannot do, upon the patient's return home. That's cool... It has been a total of 32 days, seems like a blur, also seems each minute was counted/felt.
Abbey doing good...really can't wait for Mom to come home. I saw Dorothy do the '3 click' on those ruby red shoes while at some friend's house the other night and well you know the rest of the story..Yeah, only in the movies, but it sure was nice to see and imagine. We just pray for the last 'in-patient', yes in-patient hospital 'undo-click' of that catheter line to happen soon.. Becky still has to have this chest catheter for 1oo days after transplant, but just being home will perhaps make carrying this dual white 'long straw' line more tolerable. (She will have to return to City Of Hope twice a week while "wearing" the chest catheter, blood is drawn from these lines, fluids are administered and more)
We trust in God's ultimate lead. We ask for patience and strength.
"I can do all things, through Him who strengths me" Phil 4:13
Celebrate life, don't ever forget how to have some fun dayz... :)+=
Much Love,
Bill & Becky
Saturday, October 31, 2009
Thursday, October 29, 2009
Slight count drop/BUT Plates doing good!
Thank you all for your being so diligent in your prayers and good all around vibes..We feel them!
Sight drop in the white count to 4400...BUT the good news is, those darn platelets which alerted us to this illness in the first place, are holding and even increased today! The platelets have a tendency to 'lag' behind the white count..They are the stubborn ones to increase. But they are at 37K, that's a 10K rise from yesterday. Believe me, we want these to go up, up, up and away.
The norm for platelets is between 150-350K. Becky did need two units of red blood today. Her hemoglobin a bit off. She did some good physical therapy yesterday. She was tired and 'mind foggy' today. But, said it before, this is all part of the road to recovery. She is eating some solid food. Her insulin needs were reduced! That's good too! So, we are indeed seeing some great recovery 'markers'. We pray for Becky to back at the "Love Shack" before we know it..OK, that's kinda one of her fave songs, "Love Shack"..
It will be repeated over and over, but we are so grateful for the physician overseeing Becky. We Praise God he was chosen for Becky's case, or perhaps he was lead to take it on. He is the associate director of the entire Hematology/Bone marrow Transplantation staff. We surely didn't/couldn't have planned this.
Onward forward..
Much love, Celebrate life!
Bill & Becky
Sight drop in the white count to 4400...BUT the good news is, those darn platelets which alerted us to this illness in the first place, are holding and even increased today! The platelets have a tendency to 'lag' behind the white count..They are the stubborn ones to increase. But they are at 37K, that's a 10K rise from yesterday. Believe me, we want these to go up, up, up and away.
The norm for platelets is between 150-350K. Becky did need two units of red blood today. Her hemoglobin a bit off. She did some good physical therapy yesterday. She was tired and 'mind foggy' today. But, said it before, this is all part of the road to recovery. She is eating some solid food. Her insulin needs were reduced! That's good too! So, we are indeed seeing some great recovery 'markers'. We pray for Becky to back at the "Love Shack" before we know it..OK, that's kinda one of her fave songs, "Love Shack"..
It will be repeated over and over, but we are so grateful for the physician overseeing Becky. We Praise God he was chosen for Becky's case, or perhaps he was lead to take it on. He is the associate director of the entire Hematology/Bone marrow Transplantation staff. We surely didn't/couldn't have planned this.
Onward forward..
Much love, Celebrate life!
Bill & Becky
Wednesday, October 28, 2009
Count increase! / 19 days old!.
Cell count up to 4800! Great jump from yesterday. Lead physician was really pleased with this.
Will even cut back on prednisone, which is very cool. Becky had some cereal tonight. It tasted so good to her. It's been 29 days, Becky getting really stir crazy..she is craving the outside world!
Onward forward..
Celebrate life..
Bill & Becky
Will even cut back on prednisone, which is very cool. Becky had some cereal tonight. It tasted so good to her. It's been 29 days, Becky getting really stir crazy..she is craving the outside world!
Onward forward..
Celebrate life..
Bill & Becky
Tuesday, October 27, 2009
On course...White count up!
Yes, on course..Whites were 3400 yesterday, and today 3800! Platelets are still low, but at least stable for last few days..Becky wearing heart monitor. Dr's orders, due to her having a 'racing heart' for a few days. But today only a few episodes today. She's eating some solid food, but not too much. Sugar still a little elevated.
Hey anybody need a bird! Just kidding..but there is some truth to question...We cannot keep the Parakeet we've had for approx. 9/10 years. Infectious disease physician said best to get it out of the house for at least a year, so Becky and I came to the decison, best to find it a permanent home, if possible, AND we did! And what a home we found. An employee of a Veterinary practice, her young son wanted a bird, so guess what! He got a bird today! Abbey and I were out to eat one day and just thought we would inquire within the office about any bird rescue organizations or perhaps anyone simply wanting a bird, and there the new owner was..ready and willing to take our sweet little Parakeet. He is in great hands. Just thought you needed a happy bird story today.
We praise God for Becky's slow but real progress. Again, we do not have any idea of discharge.
We just pray for her to regain her strength and stability, and for those whites to keep streaming upward!
We press on..May you have "the peace that surpasses all understanding."
Celebrate life,
Bill & Becky
Hey anybody need a bird! Just kidding..but there is some truth to question...We cannot keep the Parakeet we've had for approx. 9/10 years. Infectious disease physician said best to get it out of the house for at least a year, so Becky and I came to the decison, best to find it a permanent home, if possible, AND we did! And what a home we found. An employee of a Veterinary practice, her young son wanted a bird, so guess what! He got a bird today! Abbey and I were out to eat one day and just thought we would inquire within the office about any bird rescue organizations or perhaps anyone simply wanting a bird, and there the new owner was..ready and willing to take our sweet little Parakeet. He is in great hands. Just thought you needed a happy bird story today.
We praise God for Becky's slow but real progress. Again, we do not have any idea of discharge.
We just pray for her to regain her strength and stability, and for those whites to keep streaming upward!
We press on..May you have "the peace that surpasses all understanding."
Celebrate life,
Bill & Becky
Monday, October 26, 2009
Day 17 post transplant..TOTAL 27 days at COH
White count still showing stability but it did drop just a bit to 3400 from 3700, but as mentioned, we were told this may happen. This is OK, a small drop.. Becky has lost 12 pounds of water weight in past 3 days!. That's good! Predisone has been tapered..and an anti-biotic has been ceased..That's OK too! She is tired..got to get her strength back as her body adjusts to this infiltration of stem cells..They are working hard to take over in the marrow.
Needless to say, but will always say it anyway, we pray for more of those new white cells to seen!
Good health and blessings to you all..
Celebrate life..no, no really, really celebrate life..
Bill & Becky
*PS. Again, if you want to post a comment..it appears doing the anonymous post is the more user friendly option..you can mention your name in the text, if you so desire..
Needless to say, but will always say it anyway, we pray for more of those new white cells to seen!
Good health and blessings to you all..
Celebrate life..no, no really, really celebrate life..
Bill & Becky
*PS. Again, if you want to post a comment..it appears doing the anonymous post is the more user friendly option..you can mention your name in the text, if you so desire..
Sunday, October 25, 2009
Stable..Day 16 after transplant
Greetings....White count stable today..no drop, no rise. Sugar still a bit high, but again, to be expected due to the medicinal cocktail. This sugar high should subside upon or around discharge day. Becky just plain tired from all the meds. and of course the constant bed rest. Yet, she does receive minimal physical therapy when able and it was wonderful for her to take a walk to the lobby on the floor. She really enjoyed seeing the San Gabriel Mountains and 'life' roaming about below. Good for her countenance.. Said again how she can't wait to go home. We just don't have any concrete idea when this may happen.
Thank you all again so much for your prayers and kind support...
God Bless...
Enjoy-Celebrate life!
Bill & Becky
Thank you all again so much for your prayers and kind support...
God Bless...
Enjoy-Celebrate life!
Bill & Becky
Saturday, October 24, 2009
Post transplant Day 15!..still increasing
Yes, Day 15 from transplant on October 9th..still showing an increase in white cells, Today 3700! and the 'other side' (the neutrohphil side I think) that was a concern to the DR., continues to rise.. Becky was tired today, but she was able walk a few feet OUTSIDE her room! This felt good to her, to be able to get out of the room.. She said: "I can't wait to go home".. There is still a quite a road to travel before this happens, but the road appears to have some smooth pavement along with the rough. Her eyes are starting to clear. There is blood in only one eye from the low platelets. Abbey was at the hospital today, but of course had to stay down in the main lobby due to the swine flu, 'no one under 18 can visit' policy. But it was still nice to have her nearby.
We pray for Becky's strength to increase. She is quite shaky from the all meds, especially predisone. We also pray the sugar levels will decrease. Insulin is still being administered WITH her nutrition 'bag'..Yes, it's all mixed in..the potassium, the sodium and more...all a big yummy liquid food cocktail.
Thank you all again for your prayers. WE hope all is well with you and your family.
Abbey and I were listening to Carrie Underwood while driving to the hospital and the popular song "Jesus take the wheel" played. We gotta still do our driving and determination in life, but man, how appropriate I thought.. "Jesus take the wheel"..even when we think we may have it so sure and steady.
Celebrate life,
Bill & Becky
We pray for Becky's strength to increase. She is quite shaky from the all meds, especially predisone. We also pray the sugar levels will decrease. Insulin is still being administered WITH her nutrition 'bag'..Yes, it's all mixed in..the potassium, the sodium and more...all a big yummy liquid food cocktail.
Thank you all again for your prayers. WE hope all is well with you and your family.
Abbey and I were listening to Carrie Underwood while driving to the hospital and the popular song "Jesus take the wheel" played. We gotta still do our driving and determination in life, but man, how appropriate I thought.. "Jesus take the wheel"..even when we think we may have it so sure and steady.
Celebrate life,
Bill & Becky
Day 14 after transplant :) Total 24 days in hosp..
Looks like the 'other side' of the white cells are now showing an increase! This is what the Dr. was hoping to see..Wanted both sides of the whites to show a rise in count! Today Becky is at 2100, yes an increase from yesterday's count. We do hope there will not be a count fluctuation as a nurse had mentioned could possibly happen..And if the 'rollercoaster' levels do materialize, let it be ever so slight. Becky is tired from the prednisone keeping her wired! Keeps her awake at night, but she did rest well for a period today...OH, and she is also taking a diuretic to rid her body of some unwanted fluid, and it doesn't take much to imagine how the fluid is purged..she gets up and down from the bed multiple times.
BUT she is so delighted to hear about the white count!...it doesn't necessarily make the other unpleasantries any less unpleasant, but it can sure make these medicinal side effects a tad less lingering when she thinks about the good that is happening. Her focus and resolve are awesome..
Stay tuned for what we hope and pray will be an increase in the good news department!
Celebrate life! Much Love..
Bill & Becky
BUT she is so delighted to hear about the white count!...it doesn't necessarily make the other unpleasantries any less unpleasant, but it can sure make these medicinal side effects a tad less lingering when she thinks about the good that is happening. Her focus and resolve are awesome..
Stay tuned for what we hope and pray will be an increase in the good news department!
Celebrate life! Much Love..
Bill & Becky
Thursday, October 22, 2009
13 days after 'bday'..some good news!
Yes! Yesterday, day 12..white count showed slight increase, from 100 to 300! and today Thursday, day 13 post transplant, they were 1200! This is indeed good news. :)+=
Now, to temper this just a bit, the Dr. said he wanted the 'other side' of the white cells to increase. He didn't see any rise in this part of the white cell arena.. Ok, who knew there would be TWO sides to the cell, or two whatevers.?!! AND the nurse overseeing Becky today said, "don't be surprised if the count fluctuates", it may drop, but hopeful to rise again. But, let me tell ya, Becky will take/absorb this small visible and real 'victory' amidst the surrounding uncertainty. The rash is slightly improved. She actually had some blood in her eyes from low platelets, but this will also improve. She is having some elevated sugar levels, so insulin is now part of the med routine. Again, this can happen in the aftermath of the stem cell procedure. Prednisone is helping with lung issue and more. She's been eating small portions of real food! Who said; 'an apple a day keeps the Dr. away'..try frosted flakes, and wow, a warm baked potato never tasted so delicious. Naturally, she is still weak from the treatment and meds. She can talk for few minutes on the phone and then it's back to rest. We don't know how much longer she will be in room isolation..if white cells get to a certain sustained level, she can leave for a walk out in the hall, maybe even the lobby on her floor, and the maybe down to main level lobby. When can she leave the room for the after care village or even home? Well, that hasn't been mentioned amongst the professionals, YET. No predictions, YET.
So, onward forward..WE thank the Lord for the positive news. It is a boost to Becky's mental state..and of course to Abbey and me. Becky misses Abbey terribly, hasn't seen her since the 10th, but we know this is only temporary. A mother and child embrace, an enduring hug will be here soon.
Lamentations 3:22- 23 "The Lord's lovingkindnesses indeed never cease, For His compassions never fail, they are new every morning; Great is thy faithfulness".
I know it may have a little saccharine feel, but give somebody a hug..your loved one, your friend...
Celebrate life,
:0) Love, Bill & Becky
PS. FYI: If you want to leave a comment, it looks like the 'anonymous' route might be the easiest. You can mention your name in the text body, if you desire.
Now, to temper this just a bit, the Dr. said he wanted the 'other side' of the white cells to increase. He didn't see any rise in this part of the white cell arena.. Ok, who knew there would be TWO sides to the cell, or two whatevers.?!! AND the nurse overseeing Becky today said, "don't be surprised if the count fluctuates", it may drop, but hopeful to rise again. But, let me tell ya, Becky will take/absorb this small visible and real 'victory' amidst the surrounding uncertainty. The rash is slightly improved. She actually had some blood in her eyes from low platelets, but this will also improve. She is having some elevated sugar levels, so insulin is now part of the med routine. Again, this can happen in the aftermath of the stem cell procedure. Prednisone is helping with lung issue and more. She's been eating small portions of real food! Who said; 'an apple a day keeps the Dr. away'..try frosted flakes, and wow, a warm baked potato never tasted so delicious. Naturally, she is still weak from the treatment and meds. She can talk for few minutes on the phone and then it's back to rest. We don't know how much longer she will be in room isolation..if white cells get to a certain sustained level, she can leave for a walk out in the hall, maybe even the lobby on her floor, and the maybe down to main level lobby. When can she leave the room for the after care village or even home? Well, that hasn't been mentioned amongst the professionals, YET. No predictions, YET.
So, onward forward..WE thank the Lord for the positive news. It is a boost to Becky's mental state..and of course to Abbey and me. Becky misses Abbey terribly, hasn't seen her since the 10th, but we know this is only temporary. A mother and child embrace, an enduring hug will be here soon.
Lamentations 3:22- 23 "The Lord's lovingkindnesses indeed never cease, For His compassions never fail, they are new every morning; Great is thy faithfulness".
I know it may have a little saccharine feel, but give somebody a hug..your loved one, your friend...
Celebrate life,
:0) Love, Bill & Becky
PS. FYI: If you want to leave a comment, it looks like the 'anonymous' route might be the easiest. You can mention your name in the text body, if you desire.
Tuesday, October 20, 2009
Day 11 after transplant..
Still some fever..nausea not as bad today..but has full body rash, due to possible reaction to some anti-biotic med..Again, this can happen. Becky did have a rough night last, some breathing issues, needed oxygen, respiratory treatment for about an hour. Cat scan ordered, showed slight, slight lower lung filtration of fluid..but no other infection or 'red flags'. Cultures were taken and these also appeared 'clean' of any infection or other complication. Started steroid treatment to ward of lung issue and perhaps a few others. She is still getting red blood when needed and of course platelets. Becky actually saw herself in the mirrow for the first time since the complete head shave. She just took it in for a moment, mumbled a few words about it (*feel free to interpret what she may have said) and then went about getting ready for a shower. She is quite amazing..Another day is soon to close. Ready for the night. Again, we pray for white count to increase. WE are grateful the Dr's. and nurses overseeing her...
Good health and God's blessings to you all.
Celebrate Life..no really, celebrate life..
Bill & Becky
Good health and God's blessings to you all.
Celebrate Life..no really, celebrate life..
Bill & Becky
Sunday, October 18, 2009
Day 10 after transplant...
Been said before and will say it again. Becky still 'on course' as far as what should be happening. Fever, nausea, white count still very low, even needed red blood yesterday, Saturday, and she still receives platelets when necessary. But again, all going to plan, ...even the big day of total hair loss. Yesterday, hair came out in a clump, thus nurse assistant took initiative to shave remaining hair..Becky didn't think this was actually happening until final stroke of shaver..Assistant said: "this is the only haircut I know"...Becky took it well..again, same ol' story, we were told hair loss inevitable, but when it happens one has to pause for a moment and absorb this "female Samson-like moment", the loss of the long flowing hair, you've had since youth...She commented; 'now I look like my brother, but only with earrings". Her attitude is still good, her 'spirit' is positive. Even with the endless barrage of medications, the extreme fatigue, and total room confinement, Becky presses on with courage. Her attention span has decreased from the 'one article in a magazine" to perhaps one picture..one sentence. I asked her today, while she was lying still, eyes open..and motionless, 'what are thinking about right now".. she said: "just getting through this", and that pretty much says it..'getting through this'.. She has the strength to do this, she has the want and the will..though it is quite difficult at this time. Though questions abound and mysteries may arise, Becky still clings to the great physician to strengthen her through these next few weeks, months and beyond. The hospital is called City of Hope..a great name indeed, but Becky knows there is the Lord Jesus who is the savior of hope. Though this sickness may temporarily rob her of voiced praised, please know, this hope carries/inspires her daily.
We ask you to pray for increased white count within a week or so...
Keep a song in your heart and a little dance in your step..
Celebrate life!
Bill and Becky
We ask you to pray for increased white count within a week or so...
Keep a song in your heart and a little dance in your step..
Celebrate life!
Bill and Becky
Thursday, October 15, 2009
Day 6 - post transplant
Each day is different...had an OK day yesterday, Weds, ate some toast and rested OK..
day before kinda weird..no solid food and not much 'giddy up' at all..
Today, Thursday..well, the fever has come, nausea as usual and more..and as mentioned, we were told this would be part of the 'standard discomfort'..the routine..But what a routine..
Becky just talked to me briefly via phone..I am working today, yes, I am trying to work a few days. She sounded exhausted, but good to hear her voice..
One note Becky wanted to make. For the past few months, leading up to hospital admittance, Becky would wake up in the early hours of the AM..2am etc. Just couldn't sleep, perhaps due to a few factors, including prednizone..BUT she also knows in her heart of hearts, it was the Lord allowing her this unique and extended 'quiet time'..She would be awake 3 to 4 hours or more..Reading scripture, praying, doing BILLS! and other work. She notes..that now she can't even focus for more than a 10 to 15 minutes on reading, writing and any other related activities. She has a 'one article-magazine' mentality right now. Likes to watches Jeopardy and a few other shows and then rest of course..
She just knows the Lord provided this wonderful quiet, reflective, productive time leading up to the stem cell procedure..She treasures she had this, cause now it seems quite foreign..
Again, we pray these new stem cells will make a nice comfortable home in Becky's marrow..
which will produce a gradual increase in white cells.
As always, thank you for your support..
**If you cannot publish a comment..or do not wish to, then feel free to email us at our home email..
Celebrate life,
Bill & Becky
Tuesday, October 13, 2009
On course...Day 4 after transplant
Overall, doing OK..she is 'on course'..Immune system (white count) very, very low, but again, this is part of the procedure..
She is weak..Solid foods may not be desired for while, but will get plenty of nourishment from IV's..We have been told a few times, she will lose her hair in a few days..BUT so far, still so wonderful to grab the brush and stroke her lovely golden hair..
Still requires platelets, (again, part of the plan) but we hope & pray this part of her life will soon be in past. She cannot go out of her room until white count ascends to desirable level.
AND the hospital just implemented policy of NO children under 18 allowed in patient rooms, not even allowed on floor/outside lobby..of course, due to that wonderful H1N1 virus..Abbey was able to visit on Saturday..time will tell if this policy will relax..We do understand the reasons why..just a bit difficult on children and patients!..
Thank you as always for your prayers and support..We truly feel them. God is the ultimate overseer of this time and place...His hands are seen everywhere. WE pray all is well with you and your family..
Celebrate Life!
Bill and Becky
She is weak..Solid foods may not be desired for while, but will get plenty of nourishment from IV's..We have been told a few times, she will lose her hair in a few days..BUT so far, still so wonderful to grab the brush and stroke her lovely golden hair..
Still requires platelets, (again, part of the plan) but we hope & pray this part of her life will soon be in past. She cannot go out of her room until white count ascends to desirable level.
AND the hospital just implemented policy of NO children under 18 allowed in patient rooms, not even allowed on floor/outside lobby..of course, due to that wonderful H1N1 virus..Abbey was able to visit on Saturday..time will tell if this policy will relax..We do understand the reasons why..just a bit difficult on children and patients!..
Thank you as always for your prayers and support..We truly feel them. God is the ultimate overseer of this time and place...His hands are seen everywhere. WE pray all is well with you and your family..
Celebrate Life!
Bill and Becky
Friday, October 9, 2009
Day "0" Fresh Stem Cells Infused!
DAY “0” Fresh Stem Cells infused!
Yes, Day “0” as it is called..Becky received the 'fresh” stem cells! YES! Hooray! She rested post infusion, but is now sitting up in bed up and is feeling good..The procedure was nothing out of the ordinary..the 'charge' nurse and the RN overseeing Becky today, simply brought the plastic 'life giving' bag into the room, hung it on the 'med tower', and the cells/blood methodically streamed directly into her hickman catheter..we could literally see blood particles or “happily marching stem cells” as Becky called them..they just marched right into her body..The bag was about the size of a large freezer bag, coloration was a pink/red and was only about half full! We said, "that's it?!” and that was indeed it..They arrived last night about 9:30. The count was approx. 8 million and Becky received them all.. Even though it may have seemed low-key and anti-climatic, it wasn't. Becky was EXCITED! WE were silent for a few minutes, giving thanks to God for this life sustaining material, and for a donor who agreed to give this 'life changing' liquid..and we thank all those early pioneers of research, for the patients who endured the early treatment process and of course for the physicians who said..'this can be done'...We just watched the little stems march through that tube and we said 'go do your thing'..Need I say, the next 14 to 21 days, (and even months) are going to be quite significant..Her white blood cells (immune system) will continue to decrease a bit more..yet, the 'good' whites will soon start to increase..We have been told, Becky will experience, fever, fatigue, loss of appetite, some possible mouth sores...BUT! every patient is different..so, stay tuned..Her body is/ will be 'fighting' the new stems for just a bit, but the 'new' should eventually be accepted and 'win-out'..She still has chemo in her system and the transplant drugs will be her little friends for quite some time. Again, other than last Sunday, her physical state has been fairly manageable -comfortable..but the REAL work starts now..Her immune system is very, very low..and so much needs to happen within her marrow/body. But again, we thank the Lord for this procedure and all those involved in the process.. Abbey is doing good..appetite and countenance much better..we are grateful for this..
Again, excitement is in the air..WE have another “birthday” to celebrate!
**OH! Correction time: as said at the beginning of this entry, Becky DID receive the direct BLOOD stem cells, not the bone marrow cell separation as written yesterday..
Celebrate life!
Bill and Becky
Yes, Day “0” as it is called..Becky received the 'fresh” stem cells! YES! Hooray! She rested post infusion, but is now sitting up in bed up and is feeling good..The procedure was nothing out of the ordinary..the 'charge' nurse and the RN overseeing Becky today, simply brought the plastic 'life giving' bag into the room, hung it on the 'med tower', and the cells/blood methodically streamed directly into her hickman catheter..we could literally see blood particles or “happily marching stem cells” as Becky called them..they just marched right into her body..The bag was about the size of a large freezer bag, coloration was a pink/red and was only about half full! We said, "that's it?!” and that was indeed it..They arrived last night about 9:30. The count was approx. 8 million and Becky received them all.. Even though it may have seemed low-key and anti-climatic, it wasn't. Becky was EXCITED! WE were silent for a few minutes, giving thanks to God for this life sustaining material, and for a donor who agreed to give this 'life changing' liquid..and we thank all those early pioneers of research, for the patients who endured the early treatment process and of course for the physicians who said..'this can be done'...We just watched the little stems march through that tube and we said 'go do your thing'..Need I say, the next 14 to 21 days, (and even months) are going to be quite significant..Her white blood cells (immune system) will continue to decrease a bit more..yet, the 'good' whites will soon start to increase..We have been told, Becky will experience, fever, fatigue, loss of appetite, some possible mouth sores...BUT! every patient is different..so, stay tuned..Her body is/ will be 'fighting' the new stems for just a bit, but the 'new' should eventually be accepted and 'win-out'..She still has chemo in her system and the transplant drugs will be her little friends for quite some time. Again, other than last Sunday, her physical state has been fairly manageable -comfortable..but the REAL work starts now..Her immune system is very, very low..and so much needs to happen within her marrow/body. But again, we thank the Lord for this procedure and all those involved in the process.. Abbey is doing good..appetite and countenance much better..we are grateful for this..
Again, excitement is in the air..WE have another “birthday” to celebrate!
**OH! Correction time: as said at the beginning of this entry, Becky DID receive the direct BLOOD stem cells, not the bone marrow cell separation as written yesterday..
Celebrate life!
Bill and Becky
Thursday, October 8, 2009
More..wow..Day 9
Ok,ok…as earlier written, ‘tweaks/corrections’ will come..and these are:
As corrected in the last entry..she got her plasma ‘siphoned’..so it would not fight against the incoming ‘fresh’ stem cells..she now has no antibodies! But all good til tomorrow. We also learned the stem cells will come from the donor’s bone marrow, and not from the red blood build up, BUT it is basically a parallel issue or result. The mucky muck machine that separated the Becky’s plasma from the red blood, will actually ‘spin’/separate the stem cells from the bone marrow donation. This process will be done tomorrow AM, before the transplant.
Becky resting well, very calm about tomorrow. No nausea, feeling overall pretty good. AND Abbey is Mom’s cheerleader, she said, “Mom, today is a new beginning, the old has been taken out and the new is coming. In two years, we’re gonna go to Hawaii and Europe. Just keep thinking about that.”
So. We press on because have hope..Our hope is in the Lord.
Celebrate Life..don’t forget to how to have fun..there is much to do..
As corrected in the last entry..she got her plasma ‘siphoned’..so it would not fight against the incoming ‘fresh’ stem cells..she now has no antibodies! But all good til tomorrow. We also learned the stem cells will come from the donor’s bone marrow, and not from the red blood build up, BUT it is basically a parallel issue or result. The mucky muck machine that separated the Becky’s plasma from the red blood, will actually ‘spin’/separate the stem cells from the bone marrow donation. This process will be done tomorrow AM, before the transplant.
Becky resting well, very calm about tomorrow. No nausea, feeling overall pretty good. AND Abbey is Mom’s cheerleader, she said, “Mom, today is a new beginning, the old has been taken out and the new is coming. In two years, we’re gonna go to Hawaii and Europe. Just keep thinking about that.”
So. We press on because have hope..Our hope is in the Lord.
Celebrate Life..don’t forget to how to have fun..there is much to do..
Thank you so very much for your love and prayers..
Bill & Becky
City Of Hope day 9../ day b4 Stem Cell 'infusion'
Becky had a good day yesterday..appetite still pretty good..some weakness but generally stable and able to walk around the hospital floor with ease..of course she has her 'drip tower' as I call it, in tow..this 7 foot 'med carrier' on wheels..Her attitude, as I mentioned before, is generally positive and ready.
She is receiving the transplant drugs...these help with warding off the 'graft versus host' disease, the big 'boogieman' of post stem cell transplant..The next 100 days are crucial to observe...and this disease can even rear it's head for up to two years..if I have my facts correct..
Seems like we learn something everyday..Please be prepared for corrections on any of my/our medical information output..
The transplant drugs may produce a more uncomfortable state for a few days or even week or two..But we have been told, each patient is different, so we pray Becky will have ease of days..
Other than Sunday, she has had mostly comfortable and manageable days..
She is developing a sore throat, which is due to the transplant drug treatment..And again, if I have my facts correct, she is techincally done with chemo and will be receiving the transplant drug regimen, BUT Becky just informed me today, she has to take one certain transplant drug for months, to again, deflect the graft vs. host disease..This will be one among many when she first arrives home..We have been told she may take as many as 21 drugs! BUT we cannot forget, this is on the road to a CURE! Yes, a CURE!
Becky has a Hickman catheter that is inserted in the right side of her chest, it has 2 tubes that run directly into the heart. This catheter is where she receives all of her intervenous medications, and they also remove blood for blood tests! This means no punctures to any arm veins.
Today she received a plasma apheresis which will assist in the transition of her blood type that will change from her current O negative to the donor's A positive! Yeah, mindblowing! The plasma apheresis was 2 hours 45 minutes in which all of her blood was slowly removed through the catheter, and her plasma and antibodies were all removed into a bag and replaced with albumin to balance out the red blood as it returned into her heart and keep her blood pressure even.
The cells are to arrive tonight, they are counted, then we think sometime around 11am tomorrow, the actual infusion of the 'fresh' stem cells will take place..
Pray for this to all be smooth and comfortable, for all medical care involved in this, to be precise and confident ..Can't say it enough, we thank the Lord for this procedure in this day and time and for a donor who has released 'life giving' stem cells to another human being..my wonderful wife..
Will be back soon.. with an update and again any neccessary corrections.. :)+=
**Abbey doing good..has better appetite and more upbeat in her voice and actions..Please keep her in your prayers..
May the Lord bless you and keep you and make His face to shine upon you..
Celebrate Life..
Bill and Becky
She is receiving the transplant drugs...these help with warding off the 'graft versus host' disease, the big 'boogieman' of post stem cell transplant..The next 100 days are crucial to observe...and this disease can even rear it's head for up to two years..if I have my facts correct..
Seems like we learn something everyday..Please be prepared for corrections on any of my/our medical information output..
The transplant drugs may produce a more uncomfortable state for a few days or even week or two..But we have been told, each patient is different, so we pray Becky will have ease of days..
Other than Sunday, she has had mostly comfortable and manageable days..
She is developing a sore throat, which is due to the transplant drug treatment..And again, if I have my facts correct, she is techincally done with chemo and will be receiving the transplant drug regimen, BUT Becky just informed me today, she has to take one certain transplant drug for months, to again, deflect the graft vs. host disease..This will be one among many when she first arrives home..We have been told she may take as many as 21 drugs! BUT we cannot forget, this is on the road to a CURE! Yes, a CURE!
Becky has a Hickman catheter that is inserted in the right side of her chest, it has 2 tubes that run directly into the heart. This catheter is where she receives all of her intervenous medications, and they also remove blood for blood tests! This means no punctures to any arm veins.
Today she received a plasma apheresis which will assist in the transition of her blood type that will change from her current O negative to the donor's A positive! Yeah, mindblowing! The plasma apheresis was 2 hours 45 minutes in which all of her blood was slowly removed through the catheter, and her plasma and antibodies were all removed into a bag and replaced with albumin to balance out the red blood as it returned into her heart and keep her blood pressure even.
The cells are to arrive tonight, they are counted, then we think sometime around 11am tomorrow, the actual infusion of the 'fresh' stem cells will take place..
Pray for this to all be smooth and comfortable, for all medical care involved in this, to be precise and confident ..Can't say it enough, we thank the Lord for this procedure in this day and time and for a donor who has released 'life giving' stem cells to another human being..my wonderful wife..
Will be back soon.. with an update and again any neccessary corrections.. :)+=
**Abbey doing good..has better appetite and more upbeat in her voice and actions..Please keep her in your prayers..
May the Lord bless you and keep you and make His face to shine upon you..
Celebrate Life..
Bill and Becky
Tuesday, October 6, 2009
More...
As mentioned, Becky had first treatment of stronger chemo, and double dose at that, since Monday's 'input' was cancelled. She sounded good tonight.. considering this more intense regimen...which, is designed to deliver a few more 'knock outs' to Becky's current immune system. Again, readying her for Friday, when the 'fresh' stem cells, as the schedule posted in her room states, are infused...In elementary terms, we want these 'fresh' stem cells to go into her marrow and make a nice home..
Becky has focus and resolve.. she may not see it, but she really does have a 'can-do-it' attitude..even amidst the fog and uncertainity of this process/journey...Did I say, I love her? I DO!
We think about and pray for the donor, who elevating or building her red blood cell count so she output the proper measure of stem cells..She will inject herself with a specific drug, neupogen (sp?)..to build this red blood count..We have surmised, she is overseas, possible Europe, but all we really know is, she's not in the US....The stem cells will be flown over..Amazing, truly amazing AND amazing that this person was found..and has given of herself..this sacrifice..this 'life giving' measure...May God grant her an uneventful procedure..which I understand should not bring any harm to her at all...
More to come..can't say it enough, thank you all for your heartfelt support and prayers..
** Abbey had a slightly more improved 'coping day'...I call it. Her hop-a-long had a little more hop..
Becky has focus and resolve.. she may not see it, but she really does have a 'can-do-it' attitude..even amidst the fog and uncertainity of this process/journey...Did I say, I love her? I DO!
We think about and pray for the donor, who elevating or building her red blood cell count so she output the proper measure of stem cells..She will inject herself with a specific drug, neupogen (sp?)..to build this red blood count..We have surmised, she is overseas, possible Europe, but all we really know is, she's not in the US....The stem cells will be flown over..Amazing, truly amazing AND amazing that this person was found..and has given of herself..this sacrifice..this 'life giving' measure...May God grant her an uneventful procedure..which I understand should not bring any harm to her at all...
More to come..can't say it enough, thank you all for your heartfelt support and prayers..
** Abbey had a slightly more improved 'coping day'...I call it. Her hop-a-long had a little more hop..
City Of Hope../ days 4, 5 & 6. Sat, Sun, Mon
Per Bill: Saturday: Weak, but doing OK considering..eating solid foods..walking around the hospital floor...
Sunday...a very tough day. Some reaction to drug that prohibits bleeding..plus low sodium levels...and of course still doing chemo..Had some disorientation in the morning but slightly better by Sunday afternoon, quite nauseous, had to have a sitter with her all night...wasn't quite able to push the nurse call button if needed.
Brother Rich, Sis-in-law Lannie, friend Sonia, and Abbey and I there...It was quite difficult for Abbey to see, absorb...please pray for her..for her eating..for her school focus..
Monday- Happy to report Becky doing much better! adjusted medication...elevated sodium levels! Stronger in voice and thought! Clearer..She hardly recalls Sunday! A blur..She remembers only a few moments!...She talked to Abbey on phone in length...and sure was nice.
We do hope and pray these kind of days, like Sunday, will be rare..but even if they come again..we pray for Becky's comfort..and of course to have wise medical guidance..
Today, Tuesday- Her lead physician..out of town a few days, but back and visited her early..Telling her we will begin the more 'effective'/stronger immuno-suppressant chemo/drugs..She will get a double dose today..STILL on the countdown for day "0"..Friday the 9th..receipt of stem cells!...Needless to day, we covet your prayers for a gentle few days..
Will be back soon..with another post..Thank you all for your love and support..We thank God for this...and we thank God we have this procedure in this day and time!
Celebrate life..Bill
Sunday...a very tough day. Some reaction to drug that prohibits bleeding..plus low sodium levels...and of course still doing chemo..Had some disorientation in the morning but slightly better by Sunday afternoon, quite nauseous, had to have a sitter with her all night...wasn't quite able to push the nurse call button if needed.
Brother Rich, Sis-in-law Lannie, friend Sonia, and Abbey and I there...It was quite difficult for Abbey to see, absorb...please pray for her..for her eating..for her school focus..
Monday- Happy to report Becky doing much better! adjusted medication...elevated sodium levels! Stronger in voice and thought! Clearer..She hardly recalls Sunday! A blur..She remembers only a few moments!...She talked to Abbey on phone in length...and sure was nice.
We do hope and pray these kind of days, like Sunday, will be rare..but even if they come again..we pray for Becky's comfort..and of course to have wise medical guidance..
Today, Tuesday- Her lead physician..out of town a few days, but back and visited her early..Telling her we will begin the more 'effective'/stronger immuno-suppressant chemo/drugs..She will get a double dose today..STILL on the countdown for day "0"..Friday the 9th..receipt of stem cells!...Needless to day, we covet your prayers for a gentle few days..
Will be back soon..with another post..Thank you all for your love and support..We thank God for this...and we thank God we have this procedure in this day and time!
Celebrate life..Bill
Friday, October 2, 2009
City Of Hope day 3 (day -7 countdown to transplant day 0)
Psalm 57:1-3
“O God, have pity, for I am trusting You. I will hide beneath the shadow of Your wings until this storm is past. I will cry to the God of heaven who does such wonders for me. He will send down help from heaven to save me, because of His love and His faithfulness.”
WHEW!! After meeting with my doctor Wednesday, I was ready to BOLT out of here!! He explained the negative aspects of this stem cell transplant..not that we hadn’t been informed of the ‘downside’ of this curative journey..but he got even more technical and explicit…Believe me, I will continue to focus on the positive road! Period!
Needless to say, this is quite an intricate process….I began chemo Wednesday night and thus far haven’t had any problems, appetite good, no nausea etc.. …will continue to receive it nightly through Sunday, then I’ve been warned the transplant drugs I begin on Monday, Tuesday, Wednesday will be very tough, harsh….will probably transfer to liquid food for quite some time..
Today, they surgically inserted a Hickman catheter in my chest/neck…I needed 2 platelet transfusions for the procedure. The areas are painful, bruised and swollen but should subside soon, I hope! Of course, pain medication is easing the discomfort..I am grateful for these kinds of drugs..this ‘hotel’ has it all..ha-ha..
Well, I’ll close for now..Soon to receive 3rd dose of ‘normal’ chemo..
Abbey has had a little difficulty sleeping, but being home with Bill will hopefully limit her anxiety..Bill’s had a little ‘cat on a hot tin roof’ syndrome, but of course, has been very supportive and focused..and I love him so much!
Again, I thank you all for your prayers. We know God, the great physician, has provided some truly wonderful earthly medical care..I know many of you have your own trials..some severe..and life altering..yes, try to see the positive, there is still much to be thankful for..
Much Love…
PS. An amusing note** The Dr. said this part of the journey at the 'hotel' will be approx. 40days and 40 nights..dwell on that awhile.
“O God, have pity, for I am trusting You. I will hide beneath the shadow of Your wings until this storm is past. I will cry to the God of heaven who does such wonders for me. He will send down help from heaven to save me, because of His love and His faithfulness.”
WHEW!! After meeting with my doctor Wednesday, I was ready to BOLT out of here!! He explained the negative aspects of this stem cell transplant..not that we hadn’t been informed of the ‘downside’ of this curative journey..but he got even more technical and explicit…Believe me, I will continue to focus on the positive road! Period!
Needless to say, this is quite an intricate process….I began chemo Wednesday night and thus far haven’t had any problems, appetite good, no nausea etc.. …will continue to receive it nightly through Sunday, then I’ve been warned the transplant drugs I begin on Monday, Tuesday, Wednesday will be very tough, harsh….will probably transfer to liquid food for quite some time..
Today, they surgically inserted a Hickman catheter in my chest/neck…I needed 2 platelet transfusions for the procedure. The areas are painful, bruised and swollen but should subside soon, I hope! Of course, pain medication is easing the discomfort..I am grateful for these kinds of drugs..this ‘hotel’ has it all..ha-ha..
Well, I’ll close for now..Soon to receive 3rd dose of ‘normal’ chemo..
Abbey has had a little difficulty sleeping, but being home with Bill will hopefully limit her anxiety..Bill’s had a little ‘cat on a hot tin roof’ syndrome, but of course, has been very supportive and focused..and I love him so much!
Again, I thank you all for your prayers. We know God, the great physician, has provided some truly wonderful earthly medical care..I know many of you have your own trials..some severe..and life altering..yes, try to see the positive, there is still much to be thankful for..
Much Love…
PS. An amusing note** The Dr. said this part of the journey at the 'hotel' will be approx. 40days and 40 nights..dwell on that awhile.
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